Today has been very hard for me as a mother. Bryce doesn't want to be held, doesn't really want you to even touch him. He just lays there in the bed. He has at times focused on each of us and obviously recognized us, but sometimes in those eyes I see a pleading, I just don't know what he is trying to tell me. He won't swallow anything. He even pools all of his saliva in his mouth and either drools it out or gags on it. His blankets and pillow are drenched in a short time from all the drool. I'm sure his throat is swollen and sore so he is getting a tylenol suppository every 4 hours (since he won't swallow). He might be having a slight withdrawal from the morphine. He is very sensitive to light and sudden loud movements bother him. I hate walking into his room and seeing him lying there awake but not moving. Bryce is usually non-stop when he is awake. Even when he is eating or nursing, something on his body is moving. But not today. He will kick his legs every once in a while and sometimes hug his favorite teddy bear PJ.
On a good note....his breathing sounds wonderful!!! It is weird to hear just how quiet he is now. He is still getting some breathing treatments for the swelling from the tube, but other than that, Tylenol, and IV fluids he isn't getting any medicine. Well they are still tapering the prednisone and he is getting Zantac, but we came in on those so they don't count!
The PICU Drs. and Dr. Woolley both feel that Bryce will be fine moving to a private room so we are now waiting for that to happen. It could take hours to days though. They need room in the PICU so if his room becomes available in the middle of the night they will call us and we will have to go up there and move. I'm excited to be able to be with him all the time. No more visiting hours or visiting restrictions, but I'm still concerned that my Bryce isn't back. The Drs. say that it will take a couple of days for the drugs to completely get out of his system. Their main concern is his breathing and since it sounds so clear, they think we are fine to move. Dr. Woolley said that if he still isn't eating by Monday, they will put another feeding tube in. I really really hope he starts eating by then. If he doesn't something really isn't right and a feeding tube won't be all he will need. Please pray for the swelling to go down in his throat and for the pain to go away. I hate it that my baby is hurting so much he can't even swallow.
Sorry this update is so late. This has been such a hard day for me.
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9 comments:
God bless that sweet boy and his parents. We are praying for the swelling and the pain to go down so he can swallow. We're also praying that he gives you a Christmas gift of wanting to be held and hugged close.
Lee and Amanda
Oh, Brooke-I wish I could make everything better. Just know that God is with you and this will all be over soon. And he'll never remember it. It's better to have this taken care of now then when he's older. I know there is nothing harder than your child being hurt and you not being able to make it better.
Brooke,
I know you don't know me very well...BUT I feel like part of the family......You are such a good mom....I can just feel it.....My prayers are with you and Bryce and your family........Thank You for the post....I have been anxious all day wanting to know how ya'lls day went....I drove by your mom's house today.....everything seems fine.....I wanted so bad to go in the house and put up a tree for ya'lls christmas in January....that sounds wunnerful.....Tell your mom to call me anytime.....BUT my main concern is that we get back to the Bryce that I saw giggling showing off his new trick on the short clip in this blog....LOL Tell Mrs Bordon I heard her hissing....too funny !!!!! What an awesome Cappy.....My prayers are with ya'll Keep the posts coming
Love Jeannie Deason
Brooke:
I am so sorry to hear about your day today. Morphine definitely has its usefulness but it also has such a downside. When Quinn was on it he was not himself at all and I was distraught. When he was being taken off of it, he did the same thing, the pleading with his eyes. It truly is so difficult as the mothers of sick children to have to watch and feel so helpless.
Though he is not himself, he knows you are there and that is so important for him and comforting for him, even if he cannot show it.
He has a great mommy and daddy and soon he will be back to his smiley self, full and energy and joy.
I'm praying for him to make a quick recovery and get back to his old self!
XOXO
Jen and Quinn
I am so sorry to hear what a rough day you have had. You have all been through so much and I can only imagine how hard this is on you. We are thinking about and praying for you. Please let us know if there is anything we can do back here for you.
Brooke and Anthony,
I am so sorry that it has been such a hard day. I long for you to be able to hold a cuddle your Bryce and I am praying that it comes very soon. I know he will heal fast if he has done so well this far. I pray he will sleep all night long and wake up rested and refreshed!! That is what Will always prays for our family.
Love,
Sarah Brown
I'm so sorry today has been hard. I've been thinking about you all day. I'm so thankful his breathing sounds good, and I pray that tomorrow will be a better day. His little body needs time to heal, and you'll be chasing him again in no time. Love, Jennifer
he will be wanting you arms as soon sa he is feeling himself again. It almost seemed like izabellw as angery with me the last couple of surgeries and it took a while but soon she was mommys girl again. I am sorry your day was so hard and am praying for a better one to follow and on and on. I hope you get a private room soon i can't imagine not being able to stay with izzy, the icu and picu in seatle lets us saty in her room al long and often as we need unless she is in a energency situation. we are praying for your sweetie and hope you know how amazing you are! you are doing a wonsderful job caring for him! thanks for your email today too.
sorry for all the typos i really need some sleep
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